Bringing inspiration and support to the TSC community through the story of Turbo & Scott
Focus on new community resources during Tuberous Sclerosis Complex (TSC) Awareness Month
May 24, 2016
This May for Tuberous Sclerosis Complex (TSC) Awareness Month, Novartis is launching a new resource for teen and young adult patients to help raise awareness and increase understanding of this rare disease. Turbo & Scott: The Movie is an animated video about a fictional teenager named Scott, who lives with the many challenges associated with TSC, a multi-system genetic disorder impacting up to one million people worldwide that causes non-cancerous tumors to form in vital organs such as the kidneys, heart, eyes, lungs and skin. TSC can also affect the central nervous system, resulting in a combination of symptoms including seizures, developmental delay, autism and behavioral problems.
The severity of TSC symptoms affect each person differently, and patients’ and families’ experiences may also vary widely. To help meet the needs of such a diverse community, we work with advocates, patients and caregivers to better understand the broad spectrum of challenges they face and develop resources to help in addressing them.
For example, teens and young adults often experience a lack of continuum in their care when transitioning from pediatric specialty centers to adult specialists. To help bring attention to this issue, we looked for a medium that would resonate with teens and young adult patients and developed the animated movie.
The launch of Turbo & Scott: The Movie, is part of Novartis’ continued commitment to providing support and solutions to help improve the health and well-being of those living with a rare disease like TSC.